A Special Father’s Day

Any man can be a father, but it takes someone special to be a daddy. This framed cross-stitch quote hung over the couch in my parents’ living room for years. My mom made it for my dad for his first Father’s Day. This cross-stitch wisdom got me thinking: if anyone can be a father, but it takes someone special to be a daddy, then what does it take to be a daddy to a child with special needs?

Dannit.

About a year ago, my daughter Ellie was having trouble holding down her feeds. She was exclusively tube fed at the time and every three hours, her dad or I would sit in front of her big, purple, offensively expensive, special medical foam feeding chair armed for battle knowing that the odds were stacked against…

Keeping Mom Well: Gray Hair, Self-Care

I quit coloring my hair about six months ago. It’s not a huge change, but my hair is more brown than blonde these days. Pretty quickly, I noticed the gray that had been hidden from me for years. It started with a few pieces in the front and on the sides. I can’t see the…

Heart-Swelling Pride

Ellie was standing on the curb when I got to her school to pick her up yesterday afternoon. I had to stop the car in the middle of the drive when I saw her. She was standing with the help of her little red walker, her hands gripping the handles. She was wearing her leg…

Fishing out of the same boat

Ellie had a cardiology follow up appointment last week and the news wasn’t great. Through her echo-cardiogram, the doctor found she has developed a new condition that creates a force of blood flow in left side of her heart that he likened to putting your thumb over a garden hose. It is not something that…

Sitting Still

There was a big thud at the bottom of the playground slide. “You better watch out! You could have been killed,” the boy yells at Jack, who had been playing at the bottom of the slide. “I couldn’t be killed. I was picking up rocks,” Jack says to the older one, standing so they are…

And

“You may be different, but we’re all creatures. All dinosaurs have different features.”  -Mrs. Pteranodon, Dinosaur Train   Permanent makes me feel claustrophobic. I feel closed and locked in a box that one day I might outgrow and want to leave. I can’t get a tattoo because I can’t think of anything that I want to…