Walking the Line

All day is a balance between letting go and holding onto breath, always waiting on the other shoe to drop. Hope is the mantra on repeat. Everything is going to be ok and it’s all under control, when actually, nothing is normal and it never will be again. Days are spent celebrating both big and…

Having Your Cake and Eating it Too

It means wanting the benefit from two possibilities when you can only choose one. Parents, teachers, therapists, experts, researchers. Pretty much everyone in the special needs world talks about the benefits of inclusion.  According to specaileducationguide.com, inclusion means “securing opportunities for students with disabilities to learn alongside their non-disabled peers in general education classrooms.” I…

Special Assurance in Unusual Times

If you are like me, you have exhausted all of Pinterest looking for sensory-friendly, educational activities while at home social distancing. Whether or not your kids are back in school this fall, parenting during the pandemic is hard. This is new territory; every decision seems impossible and there is even more added for us to…

Let’s Go Play

We were at the library when my husband Ben asked me out on our first date. I was leaving from a meeting in one of the conference rooms when I ran into him looking at the used books for sale. I walked over to say hello, and he wrote my phone number down on the…

Better than Bad

I took Ellie to meet her new teacher and to visit her new classroom. Her new year of school starts on Monday. She has been at home with me since March. Other than teletherapy to keep up with OT, PT and ST, she really hasn’t had a lot of connection with school. She was excited…

Change is hard.

This week marked the end of an era of sorts for Ellie. It is the official end of her school year and on Monday, she starts in her new classroom with her new teacher and therapists. I already knew that each year she would move to a different classroom with a new teacher, but I…

Ensuring Special Needs are Met

When my daughter Ellie was born with Down syndrome and two heart defects, we were lost on where to start to get her insured. As any parent of a child with special needs knows all too well, dealing with insurance is frustrating. The rules are confusing and ever-changing making sorting through it all a full-time…

Proving me wrong every time

Ellie was kicked out of the G-tube Club this week. She had been a faithful member for over two years, but as she grew older, she found herself unable to continue to abide by the rules and standards. I guess chewing and swallowing her food was just too much of a temptation. I am glad…

How to Have It All

I am rewatching one of my favorite television shows, Parenthood, for the third time. I don’t remember the last time I watched it, but I do know that didn’t have any kids and I wasn’t married then.   This time, it was a reality check to learn in the first episode that one of the…

On the Front Line of Special Needs

When our daughter was born we were expecting Down syndrome and heart defects, but as time went on, we learned more about her and global delays, hypothyroidism, ear and eye concerns and lung disease. After telling her nurse that I didn’t want anyone else to come in our room because I couldn’t handle another diagnosis,…